Monica Kaye Snyder is a writer who blogs about a long journey of chronic illness and daily physical suffering. Some of her diagnoses include Chiari malformation, Ehlers-Danlos Syndrome, Tethered Spinal Cord, Craniocervical Instability, Postural Tachycardia Syndrome, Intracranial Hypertension, Mast Cell Activation Disorder and most recently PANS/PANDAS. She’s seen real miracles happen and holds on to Christ’s Hope as an anchor for her soul while living in great pain.
She is wife to Dan and mother to Delaney Jayne and Danica Jean. She knows for sure if she does nothing else well in her life this will matter and be enough.
She is founder of Option EDS (the retreat) and dreams of building a permanent respite home for EDS warriors in Tucson, Arizona.
Most days you’ll find her cozied in her nest with her face toward the Catalinas and the sun. She will be sipping a cup of tea or coffee and snuggling her Yorkie Poo, Twixie. There are always books and journals piled high around her and a piece of pottery holding beautiful pens with a stack of stamps and stationary leaning there. Writing pen to paper snail mail is her ministry. She reads at least one poem every day. Music is what feelings sound like in her heart and home. Light is her muse and darkness is her hell.
She is rescued and redeemed. She believes at least six impossible things before breakfast. She’s seen kindness change everything.