About Monica

Monica Kaye Snyder is a writer who blogs about a long journey of chronic illness and daily physical suffering. Some of her diagnoses include Chiari malformation, Ehlers-Danlos Syndrome, Tethered Spinal Cord, Craniocervical Instability, Postural Tachycardia Syndrome, Intracranial Hypertension, Mast Cell Activation Disorder and most recently PANS/PANDAS. She’s seen real miracles happen and holds on to Christ’s Hope as an anchor for her soul while living in great pain.

She is wife to Dan and mother to Delaney Jayne and Danica Jean. She knows for sure if she does nothing else well in her life this will matter and be enough.

She is founder of Option EDS (the retreat) and dreams of building a permanent respite home for EDS warriors in Tucson, Arizona.

Most days you’ll find her cozied in her nest with her face toward the Catalinas and the sun. She will be sipping a cup of tea or coffee and snuggling her Yorkie Poo, Twixie. There are always books and journals piled high around her and a piece of pottery holding beautiful pens with a stack of stamps and stationary leaning there. Writing pen to paper snail mail is her ministry. She reads at least one poem every day. Music is what feelings sound like in her heart and home. Light is her muse and darkness is her hell.

She is rescued and redeemed. She believes at least six impossible things before breakfast. She’s seen kindness change everything.

14 Comments on About Monica

  1. Violet
    November 13, 2014 at 2:28 am (10 years ago)

    I am so thrilled with your new adventure and looking forward to what He has to share through you. Love the Channing quote on this page. God bless you and make your words a symphony of praise to Him.

  2. Beth
    November 17, 2014 at 6:07 pm (10 years ago)

    Just went thru every page – I love what you’ve created and can’t wait to see what lies in store for you! Hugs my friend. xoxo

    • Monica
      November 17, 2014 at 6:10 pm (10 years ago)

      Thank you Beth! It feels like home already. LOVE.

  3. Suzanne HOllon
    December 2, 2014 at 9:36 pm (10 years ago)

    This is a beautiful place Monica! It captures the heart of you. Congratulations!

  4. Gina W.
    December 13, 2014 at 11:47 pm (10 years ago)

    We have so many of the same challenges, and we trust in the same Father of Grace.

    It’s a blessing to find your blog.

    God bless you.

  5. SharonB
    January 8, 2015 at 10:28 pm (9 years ago)

    I just found came across your blog and so glad I did. I look forward to “following” you. I moved to the Shenandoah Valley in 1976 and lived there until I got married in 1983. Such a beautiful place. 🙂

  6. Joy
    March 26, 2015 at 9:16 am (9 years ago)

    I spent my formative years (2-16 then 20-28) in Virginia and it will always be my home. I have EDS, craniocervical instability and some other related conditions. (Undiagnosed with EDS until age 42) Reading what you write is like reading me.

  7. Margaret
    March 29, 2015 at 2:21 am (9 years ago)

    Sorry for your suffering. I’ve been reading a lot about MTHFR abnormalities and how they tie in with all these things. I hope you’ve tracked that down. I’m praying for you tonight. in Jesus, MB

    • Monica
      April 1, 2015 at 8:49 pm (9 years ago)

      Margaret, Yes, I have been tested and have several MTHFR mutations. Every facet of this illness creates a perfect storm. Thank you for your prayers.

  8. Crystal Granite
    May 14, 2016 at 7:42 am (8 years ago)

    I have chiari malformation, spina bifida, fibromyalgia, degenerative disc disease, herniated discs, facet syndrome, ptsd/anxiety/depression, osteoarthritis, yada yada yada the list goes on….my point is I get what you go thru to get thru a day and love your blog. Can’t wait to read the whole thing. Thank you.

  9. Crystal Granite
    May 14, 2016 at 7:51 am (8 years ago)

    One more thing….if you haven’t had your vitamin D level checked you may want to as a low level contributes to the pain, depression, anxiety, infertility, low energy levels and so much more. Mine was a 7 (norm 85-115) and while most of my daily struggles come from symptoms/things that will never go away, much like yours, raising my levels has helped SO much. My pain isn’t as bad and my lifelong depression/anxiety is at least 40% better.

    • Monica
      May 14, 2016 at 11:06 am (8 years ago)

      Welcome Crystal. I do take Vitamin D. It’s a long road, but finding one another and encouraging one another is gift! You may enjoy reading the first four years of our journey at http://www.danicajeanblogspot.com Strength for today warrior friend.

  10. Mony
    June 29, 2020 at 2:19 pm (4 years ago)

    Hi, my name is Monica. I’m a worshiper singer-song-writer for Christ who daily struggles and sees the hand of God through Dysautonomia. I thank you for your blog and specially for the Faith and endurance in Christ as He gets the glory for all our small daily victories. I understand and have experience praying a dance and even worshipping while not being able to move my body. Thank you for your testimony.


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