October 2017 archive

Fellowship of Love. Suffering as a Footnote. A New Story

by

Broken
“Suffering is a call for presence; it’s a call for us to be present–not only to the brokenness in the world, but to the brokenness in our own soul, and to risk trusting others with our wounds.”

My eyes were filled with hot tears welling over, streaming down my face and neck as I collapsed into bed last night. Dan held my hand. We’d come from the calling hours of a friend. Earle was more than the father of a dear friend. He was a man who loved our family faithfully with his ability to give. For years this humble man who kept his checkbook down to the penny and budgeted every part of his simple life would write a check for $25.00, wrap it in a piece of white paper and mail in a plain envelope to our house. There was no note. The sacrifice and the surety of this love was one of the ways God reminded us month after month that He is for us. Our families became entwined through relationship. I loved his daughter, Sharon, fiercely during a time when she was lost and very alone. Her life has become a trophy of Grace and redemption. He and his wife, Pat, never forgot my willingness to open my heart and our home to her when she was holding them at arm’s length. This woman has become my own fierce friend. She has loved me back in a hundred ways. Isn’t this how it’s meant to be? The giving and receiving become the same thing.

I checked my phone before trying to fall asleep and found an email from my sister-in-law with the obituary of her dear dad. He was another man I loved. He and his wife, Jackie, opened their hearts and home to Dan and I early in our marriage. We celebrated holidays with them and Dan’s brother, Steve, and Amy in Bay Village. We celebrated birthdays in Rockville when we lived in Maryland. And last spring, when I was in Charlottesville for my first VP shunt placement, I spent several beautiful days with them at their new home in Virginia. Frank had just received his liver cancer diagnosis, and I sat with their family on the deck in the sunshine as they began to talk about the tough things he was facing. I saw him in April this year when I returned to UVA for my shunt revision. I asked my dad to drive me to Culpeper to visit them. He was so thin, and I could feel his tired. My heart has keenly carried my Amy’s and mama Jackie’s hearts as things became more grim. I admire Frank’s brave desire to leave when it was time to go and the great love of his family to release him peacefully. Amy called me early this week to tell me she was working on her dad’s remembrance and her mom wanted our family to receive any donations in honor of Frank. I was struck again with the way love always come full circle when it’s given and received with no expectations. It’s a flow of opening our joy and pain to one another, promising we will be there by showing up and trusting someone will always show up for us too.

I cried again. I wondered out loud to my husband about the things our lives are made of when we have to boil them down to three paragraphs. We are all terminal. Our days were written when there were none of them. What will my lines say?

I’m facing my brokenness head on this week. I am in continuous pain from the tethered cord. My legs are like jelly. I have a constant headache. I’m sleeping less and less. I feel like every movement is too hard. I was back to the hospital early yesterday for more adrenal testing. This afternoon I have a biopsy of my right thyroid. Thursday I have chemo all day. Sunday I will celebrate 42 years of life. Monday I will say goodbye to my girls and my puppy and leave for Maryland for my twenty-sixth surgery. I’m broken.

I’ve been quiet of late about all this pain. I’m so weary of the question, “Will this be your LAST surgery?” I’ve wanted to be able to tell a miraculous ending to this story. I’ve begged God for something new. I’ve been slowly digging back into Ann Voskamp’s book The Broken Way. I read it last year while sitting vigil beside my Danica’s bed at Johns Hopkins. There was so much I couldn’t swallow then. The smoke of suffering was too thick.

Yesterday while sitting in the infusion room at Mercy giving blood, being injected with steroids, waiting and giving more blood just to wait again I read these words,

The miracle happens in the breaking…
How have I tried to avoid suffering, mask my suffering, terminate all suffering instead of sharing it, letting others participate in my own, choosing to stand with others in theirs, stay with their suffering and break the heart open and let people into all of my own–so that suffering might be shaped into an intimacy that transcends and transforms the suffering? The heart has a far greater capacity for pain that can even be imagined–because it can love far greater than ever imagined.”

Dear ones, the love we’ve received and the communion of suffering is gift. I’ve been unable to ask louder than a whisper for help with this surgery, but we’ve laid it down at the feet of our God who has scandalously provided every need. Dayenu. Enough. MORE than enough. Once again we are surprised somehow by His plan to care for every need and meet us with grace so we will be equipped for the next hard thing. He gets the glory.

The fellowship of love is the new story. Suffering is the footnote. The miracle happens in the breaking.

Thank you for coming close. Thank you for once again sitting with us in the burn. Thank you for giving and receiving. Our Hope remains.

(Oh how I love Christa’s song art.)

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A Felt Risk. Good Gifts. Paying Attention

by

Fall Bookcase
“Did you ever imagine that what we call ‘vulnerability’ might just be the key to ongoing growth? In my experience, healthily vulnerable people use every occasion to expand, change, and grow. Yet it is a risky position to live undefended, in a kind of constant openness to the other—because it means others could sometimes actually wound us. Indeed, vulnera comes from the Latin for ‘to wound.’ But only if we take this risk do we also allow the opposite possibility: the other might also gift us, free us, and even love us. But it is a felt risk every time. Every time.”–Richard Rohr, The Divine Dance

I’m sitting in my favorite place in the world. It’s not the beach or the Shenandoah Valley. It’s not the Tucson mountains. It’s my worn “nest” chair in the corner of our little ranch in Uniontown, Ohio. It’s chilly today. I have the windows cracked and the screen is still on the open front door. I’m listening closely for the change in the bird songs. The cicadas are gone. The breeze in the leaves has a different tone as if they are saying a sweet farewell to one another before they let go. Five years ago God gave this home to us. Do you remember the miracle? So many of you prayed. It’s the longest Dan and I have ever lived in one place together. There is not a day I don’t utter gratitude for this sacred space. I follow the light from east to west. I know which plants will bloom first and where the cardinals will make their nests in the spring. I cherish the sound of the rain on the chimney flue. I love the old Magic Chef stove that bakes more evenly than any oven I’ve ever had before even though it doesn’t match our other appliances. The seasons change in the farmland around us. The corn is mostly harvested now and the fields feed the geese and birds beginning their journey’s south. Great is His faithfulness. Good gifts. I’m paying attention.

It’s almost time for the girls to get home from school. A dear friend began bringing them every day she can for me. It’s out of her way and takes a half an hour off her afternoon, but she does this thing that saves me anxiety and spoons. It protects my spine and keeps my children and others safe on the days I truly shouldn’t be driving. Last week she grabbed us Panera for dinner on a day we would have eaten cereal. Good Gifts. I’m paying attention.

Lying beside me on the side table is beautiful hand designed letter from a friend who has followed our story since we were on a book launch together. She and I finally met in real life at a retreat this spring. Their family has been praying for us. Over the past decade of hard I thought I’d seen specific kindness in almost every form. Their love is fresh. Dan has been working any overtime he can to help with our always challenging financial situation. This friend’s husband is a physical therapist. He committed to taking at least one extra client a week in solidarity with Dan. They have been sending what he makes to us to help with our bills. Good gifts. I’m paying attention.

I scroll through the texts on my phone to find the one I received Friday from the same friend who flew from Denver to Maryland to drive me around to my most recent appointments. It says, “Booked November 13-17th. Woohoo!” I was confused. I thought maybe she meant their condo at Winter Park. No, she booked plane tickets to come be with me in the hotel after my surgery. I’ve been most frantic about being alone after my operation. Dan has to leave Sunday, the 12th, to return home to work. My surgery instructions clearly say I need a caregiver four weeks post-op. The first few days after discharge are rough because of pain and wound care. I was worried about coordinating rides to my appointment where I’ll be cleared to come home and to the airport, my desired mode of transportation back to Ohio, while trying to keep my spine straight and juggle my things. She will be there to help me. This friend who just fought Lymphoma, who works full time, who has young children with busy lives is the answer to my prayer, “Please, God, I don’t want to do this alone.” The sacrifice is not only hers but her husband’s as well. He will step in once again and hold the fort down while she shows up for me. Good gifts. I’m paying attention.

I spent a few weeks after finding out about my re-tethered spinal cord and needed surgery in grief and shut myself down emotionally. I needed to move through Danica’s sadness about having to adopt Rolo out to a new family and throw myself into making her tenth birthday a kind of redemption for this huge loss I felt personally responsible for. The birthday surprise would not have been possible without the great love of a friend and her daughter who took Danica and I to Columbus for an overnight American Girl celebration. I pushed my body to make a long ago planned trip to Jacksonville, Florida with my family to attend my little sister’s wedding. It was good, but I paid dearly. I had a kind of breakdown last week when I returned. I didn’t move from the bed Tuesday. I had a video session with my counselor, and everything I’d been holding in came rushing out. I hadn’t shared my fear, my sadness or my shame with anyone. Another surgery is incredibly painful for the people I love. I especially try to protect Dan and the girls from how close I am at times to just quitting this fight. My support system has shifted. People I relied on previously have been called away to care for others in their lives. I don’t want to lay even a bit of this burden on their already full plates. I most of all didn’t want to share specifics about the money we need for this necessary surgery to even happen. I want to give everything back tenfold and never receive again. I want my husband to never feel the guilt he experiences when someone else meets our needs, because he has done all he can, and it feels like it’s not enough.

The kind of wound that comes from being vulnerable hurts even when good blossoms from it. My wise counselor encouraged me to once again take the risk to be loved. She reminded me how continuing to tell our story here, allowing provision to come and then paying attention and telling about the gifts, is the place where we change and grow and invite others into this exquisite dance of caring for one another. She reminded me of my ministry of prayer and #pentopaper and beautiful dream of the EDS beach retreat being realized. She reminded me I am giving too.

The girls had off school last Friday. Delaney and I were listening to Adele. She was singing passionately about “Turning Tables.” Laney said she couldn’t imagine a relationship making her feel that desperate or sad. This led into a conversation about the great risk of giving your heart and mind and body to another human being with very little control over their response and their ultimate decision day after day to stay or turn around and leave you. Knowing this we can decide to protect ourselves by never risking, but we would miss the gift, the freedom and the love possible because of vulnerability.

As we talked I realized the writing I do here is a long and meaningful relationship with those of you who’ve invested in us. Shutting down now or becoming informational instead of baring my heart, because it feels too risky, is a little like walking away from the great love of God through you.

I’m ever humbled. I’m opening again to allow the hurt and the healing of this next surgery to expand, change and grow my family and I. I’m stepping out hoping someone shows up and just maybe they will receive a gift through our fleshy bare and trusting souls. Good gifts. I’m paying attention.

(If you would like to donate towards my surgery deposit and the two weeks of hotels in Maryland you can give here and through the gofundme link on the right of this blog. We trust and wait and suffer gratitude.)

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