Archive of ‘#PentoPaper’ category

Dear God, (About Laney)

by

LaneyLookAZ

“Be alert, be present. I’m about to do something brand-new. It’s bursting out! Don’t you see it? There it is! I’m making a road through the desert, rivers in the badlands.”–Isaiah 43:19

Dear God,

I found a letter Delaney wrote to You. It was a gift, because all mamas wonder where their children’s hearts truly lie. I’m loving my girl in a more desperate way lately. Each day is one less I have with her across the hall. I question if I’ve loved her in the right ways, and if I’ve pointed her to You before anything else.

I’ve sat in this tiny corner of the world for so long now. She’s seen my faith in private ways. My open Bible in the morning. Music streaming about You. My knees on the floor at the bench where I go for the crying kind of praying. She’s seen my service to others through piles of letters waiting to be mailed or care packages sitting out until I get them just right. She’s listened to me take phone calls late at night from people I’ve never met, sharing our story, helping them take the next brave step in their own. She sees my eyes light up when I talk about the Option EDS retreat. She’s seen meals show up on days I could not feed her. She’s seen checks come in the mail from all over the world and understood they were Your provision for us through other’s hands and hearts. We haven’t been in church regularly. She doesn’t have the muscle memory of every Sunday worship and preaching. Instead we mostly gather around the living room and have “home church.” She says it’s one of the most special things about our family. I hope she knows the Body of Christ is as big as we’ve been loved, but the local gathering of believers is important and necessary too. I’ve failed her there. I’m sorry.

You’ve cared for her all those times I’ve packed my suitcase and went away. I always left her a letter to find. Surgery after surgery I wrote her as if I might not come back. I never wanted her to guess about how much I love her or how much peace she could find in You if it was time for me to go. You’ve given her a way of moving forward with joy even when things were so painfully stuck here at home. She’s seen me in unspeakable pain. She’s watched her sister suffer. She’s felt her daddy’s breaking heart for it all. And still she gets up and does life with a fierce expectation of good.

Lately I’ve felt the world pressing in on her. I’ve seen her scratch her head about people who call themselves by Your name but do and say things that look and feel so completely different than Jesus did. I’ve had to talk about nuclear war, sexual harassment and abuse, divorce and drugs. I don’t know if I’m getting any of it right. She is thinking about her future. I haven’t raised her to be looking for a husband or dreaming of having babies at fifteen. She knows my greatest calling has been in my role as a wife and a mother. I think this is enough. You’ve given her gifts. I tell her over and over again if she seeks You first all these things will be added unto her.

A few weeks ago I felt Delaney’s spirit hurting. Looking through her eyes I could see how small this cold and snowy street in Ohio seems. I was in so much pain. I was paralyzed with the fear of my brain shunt failing again. You made the way for us to travel to Arizona together. Just my girl and I. She fell in love with the desert. She could scarcely believe how happy and well I was when we were there. We spent every moment together, and it seemed to fill in empty spaces of time we thought we’d lost.

She talks about all this in the letter she wrote You. Moving our entire lives across the United States feels too scary. Four times I’ve left Ohio in February to find relief and heal. Four times I’ve come home knowing I could have a more well life in that place. But I was afraid. She believes us staying here. Me hurting like I am today. Me risking another invasive brain surgery. Me not being able to lift my head some days. Me biting my cheeks to try and hide the suffering. That it’s not the role of a martyr so she, Dan and Danica can have the better choice here. She believes what Dan has always said. She is only as well as I am. Why would I not take the risk to have the best life?

God, It’s true. I’m scared.

On our last hike through the saguaros we built an Ebenezer. “Thus far the Lord has helped us.” I believe You direct our paths through providence and provision. I know for sure with You all things are possible. I want Delaney to see You make the way in the wilderness. I want her to see You doing a new thing.

Give us the faith. Show us the way.

From You. Through You. To You. Glory forever.

Amen

Ebenezer LaneyandIAZ SaguaroShadows

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A Felt Risk. Good Gifts. Paying Attention

by

Fall Bookcase
“Did you ever imagine that what we call ‘vulnerability’ might just be the key to ongoing growth? In my experience, healthily vulnerable people use every occasion to expand, change, and grow. Yet it is a risky position to live undefended, in a kind of constant openness to the other—because it means others could sometimes actually wound us. Indeed, vulnera comes from the Latin for ‘to wound.’ But only if we take this risk do we also allow the opposite possibility: the other might also gift us, free us, and even love us. But it is a felt risk every time. Every time.”–Richard Rohr, The Divine Dance

I’m sitting in my favorite place in the world. It’s not the beach or the Shenandoah Valley. It’s not the Tucson mountains. It’s my worn “nest” chair in the corner of our little ranch in Uniontown, Ohio. It’s chilly today. I have the windows cracked and the screen is still on the open front door. I’m listening closely for the change in the bird songs. The cicadas are gone. The breeze in the leaves has a different tone as if they are saying a sweet farewell to one another before they let go. Five years ago God gave this home to us. Do you remember the miracle? So many of you prayed. It’s the longest Dan and I have ever lived in one place together. There is not a day I don’t utter gratitude for this sacred space. I follow the light from east to west. I know which plants will bloom first and where the cardinals will make their nests in the spring. I cherish the sound of the rain on the chimney flue. I love the old Magic Chef stove that bakes more evenly than any oven I’ve ever had before even though it doesn’t match our other appliances. The seasons change in the farmland around us. The corn is mostly harvested now and the fields feed the geese and birds beginning their journey’s south. Great is His faithfulness. Good gifts. I’m paying attention.

It’s almost time for the girls to get home from school. A dear friend began bringing them every day she can for me. It’s out of her way and takes a half an hour off her afternoon, but she does this thing that saves me anxiety and spoons. It protects my spine and keeps my children and others safe on the days I truly shouldn’t be driving. Last week she grabbed us Panera for dinner on a day we would have eaten cereal. Good Gifts. I’m paying attention.

Lying beside me on the side table is beautiful hand designed letter from a friend who has followed our story since we were on a book launch together. She and I finally met in real life at a retreat this spring. Their family has been praying for us. Over the past decade of hard I thought I’d seen specific kindness in almost every form. Their love is fresh. Dan has been working any overtime he can to help with our always challenging financial situation. This friend’s husband is a physical therapist. He committed to taking at least one extra client a week in solidarity with Dan. They have been sending what he makes to us to help with our bills. Good gifts. I’m paying attention.

I scroll through the texts on my phone to find the one I received Friday from the same friend who flew from Denver to Maryland to drive me around to my most recent appointments. It says, “Booked November 13-17th. Woohoo!” I was confused. I thought maybe she meant their condo at Winter Park. No, she booked plane tickets to come be with me in the hotel after my surgery. I’ve been most frantic about being alone after my operation. Dan has to leave Sunday, the 12th, to return home to work. My surgery instructions clearly say I need a caregiver four weeks post-op. The first few days after discharge are rough because of pain and wound care. I was worried about coordinating rides to my appointment where I’ll be cleared to come home and to the airport, my desired mode of transportation back to Ohio, while trying to keep my spine straight and juggle my things. She will be there to help me. This friend who just fought Lymphoma, who works full time, who has young children with busy lives is the answer to my prayer, “Please, God, I don’t want to do this alone.” The sacrifice is not only hers but her husband’s as well. He will step in once again and hold the fort down while she shows up for me. Good gifts. I’m paying attention.

I spent a few weeks after finding out about my re-tethered spinal cord and needed surgery in grief and shut myself down emotionally. I needed to move through Danica’s sadness about having to adopt Rolo out to a new family and throw myself into making her tenth birthday a kind of redemption for this huge loss I felt personally responsible for. The birthday surprise would not have been possible without the great love of a friend and her daughter who took Danica and I to Columbus for an overnight American Girl celebration. I pushed my body to make a long ago planned trip to Jacksonville, Florida with my family to attend my little sister’s wedding. It was good, but I paid dearly. I had a kind of breakdown last week when I returned. I didn’t move from the bed Tuesday. I had a video session with my counselor, and everything I’d been holding in came rushing out. I hadn’t shared my fear, my sadness or my shame with anyone. Another surgery is incredibly painful for the people I love. I especially try to protect Dan and the girls from how close I am at times to just quitting this fight. My support system has shifted. People I relied on previously have been called away to care for others in their lives. I don’t want to lay even a bit of this burden on their already full plates. I most of all didn’t want to share specifics about the money we need for this necessary surgery to even happen. I want to give everything back tenfold and never receive again. I want my husband to never feel the guilt he experiences when someone else meets our needs, because he has done all he can, and it feels like it’s not enough.

The kind of wound that comes from being vulnerable hurts even when good blossoms from it. My wise counselor encouraged me to once again take the risk to be loved. She reminded me how continuing to tell our story here, allowing provision to come and then paying attention and telling about the gifts, is the place where we change and grow and invite others into this exquisite dance of caring for one another. She reminded me of my ministry of prayer and #pentopaper and beautiful dream of the EDS beach retreat being realized. She reminded me I am giving too.

The girls had off school last Friday. Delaney and I were listening to Adele. She was singing passionately about “Turning Tables.” Laney said she couldn’t imagine a relationship making her feel that desperate or sad. This led into a conversation about the great risk of giving your heart and mind and body to another human being with very little control over their response and their ultimate decision day after day to stay or turn around and leave you. Knowing this we can decide to protect ourselves by never risking, but we would miss the gift, the freedom and the love possible because of vulnerability.

As we talked I realized the writing I do here is a long and meaningful relationship with those of you who’ve invested in us. Shutting down now or becoming informational instead of baring my heart, because it feels too risky, is a little like walking away from the great love of God through you.

I’m ever humbled. I’m opening again to allow the hurt and the healing of this next surgery to expand, change and grow my family and I. I’m stepping out hoping someone shows up and just maybe they will receive a gift through our fleshy bare and trusting souls. Good gifts. I’m paying attention.

(If you would like to donate towards my surgery deposit and the two weeks of hotels in Maryland you can give here and through the gofundme link on the right of this blog. We trust and wait and suffer gratitude.)

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